Annual Climb & Get Together

 

Special notices:

1. The Sunriseupcroaghpatrick 2018 weekend activities in Westport were a great success and we would like to thank everyone who helped make it so fantastic. We had over 150 people who climbed and walked to support our Charities on Sat June 30th, over 50 people who attended our Dinner event on Sat night in the Westport Plaza Hotel and over 20 who cycled the Western Greenway on Sun July1st. We had super weather, great Craic enjoyable Challenges while all the time helping our chosen Charities.

So now we must focus on maximising the funds we raise for our chosen Charities: Young Parkinson’s Ireland, Huntington’s Disease Association of Ireland and the Irish Motor Neurone Disease Association.

Please support our fundraising by clicking the Donate button above. All funds go directly to the charities via iDonate.ie and you can choose to support all charities or just one.

Thank you for your support! 

Click here

to see John Kelly speaking about Eithne one of the IMNDA Speciality Nurses.

2. Please watch ‘My Broken Brain’ on RTE 1 TV at 21.35 on Tuesday July 17th 2018 . This program features some of the 700,000 + people in Ireland who suffer from some form of neurological condition. One of our great supporters Gary Boyle from Parkinson’s Ireland is featured. Watch a trailer of the program here :

3.. One of our fundraising team Fergal O’Neill has recently completed the most difficult footrace on earth i.e. 250 Km across the Sahara desert. He started on April 8th 2018 in up to 50 degrees Celsius and ran for 6 days in aid of our chosen charities. That was an incredible challenge as it is a Marathon every day for six days in a heatwave. He also recently completed an extreme run of 127Km along the Wicklow Way on June 9th which started at midnight and he finished at around 6pm c 18 hours of running!!  Please see his story at the bottom of this page. We would be very grateful if you could share this page with your friends and click the donate button!. Thank you.

Annual Climb & Get Together

 

Special notices:

1. The Sunriseupcroaghpatrick 2018 weekend activities in Westport were a great success and we would like to thank everyone who helped make it so fantastic. We had over 150 people who climbed and walked to support our Charities on Sat June 30th, over 50 people who attended our Dinner event on Sat night in the Westport Plaza Hotel and over 20 who cycled the Western Greenway on Sun July1st. We had super weather, great Craic enjoyable Challenges while all the time helping our chosen Charities.

So now we must focus on maximising the funds we raise for our chosen Charities: Young Parkinson’s Ireland, Huntington’s Disease Association of Ireland and the Irish Motor Neurone Disease Association.

Please support our fundraising by clicking the Donate button above. All funds go directly to the charities via iDonate.ie and you can choose to support all charities or just one.

Thank you for your support! 

Click here

to view John Kelly speaking about Eithne one of the IMNDA Speciality Nurses

2. Please watch ‘My Broken Brain’ on RTE 1 TV at 21.35 on Tuesday July 17th 2018 . This program features some of the 700,000 + people in Ireland who suffer from some form of neurological condition. One of our great supporters Gary Boyle from Parkinson’s Ireland is featured. Watch a trailer of the program here :

3.  One of our fundraising team Fergal O’Neill has recently completed the most difficult footrace on earth i.e. 250 Km across the Sahara desert. He started on April 8th 2018 in up to 50 degrees Celsius and ran for 6 days in aid of our chosen charities. That was an incredible challenge as it is a Marathon every day for six days in a heatwave. He also recently completed an extreme run of 127Km along the Wicklow Way on June 9th which started at midnight and he finished at around 6pm c 18 hours of running!!  Please see his story at the bottom of this page. We would be very grateful if you could share this page with your friends and click the donate button!. Thank you.

“Sunrise Up Croagh Patrick” is an annual get-together of friends who climb Croagh Patrick or walk nearby & cycle the Greenway, have a super time & raise funds for worthwhile charities fighting Neurological Diseases.

It was initially organised by John Kelly (St Jarlaths 1979) and supported by his University classmates and work colleagues from Hanson Regan. The event has grown and attracted wider support from many great people who have been affected by Huntington’s Disease, Parkinson’s, Motor Neuron Disease & Dementia.

This year’s event was on 30 June 2018 (Climb, walk & dinner) + July 1st (Cycle) and we stayed at the Westport Plaza Hotel for two nights from 29 June. (Cost €199 per person sharing 2 nights B&B + 1 dinner see details below)

So why not join us for this great weekend of activities in Westport next year 29th & 30th June 2019 , our 5th annual #SunriseupCroaghPatrick event. Form a group of your colleagues and friends, or come on your own and mingle with the whole gang. Enjoy great craic and support very deserving charities. Registration/Ticket details will be updated soon for next years event.

Next Event – 29/30th June 2019 – We will be posting information about next years events here so please check back for full details or if you would like to receive them by email please  send you name to sunriseupcroaghpatrick@gmail.com and we will revert when we have things finalised- Thank you!

Sat 30 June & July 1st 2018 – Was a great success. Here are details of what we said in advance of the events ……

When we say climbing, its not vertical, no ropes, no scrambling, with a bit of care, its well within the reach of most people (click the video links below to see what it is like). However this year at the same time we will also have a 4Km or up to 11Km low level walk near Croagh Patrick for those who can’t or choose not to climb. See the choice of walks on the Murrisk website: http://www.murrisk.ie/T-VillageWalks.html.  On Sun July 1st some of us will be cycling from Achill or Mulranny to Westport along the Greenway. This is an optional extra and a trial event for this year (limited places).

To register for the climb or the walk or the cycle please select the relevant ticket below. Also to book the dinner on Saturday night in the Wesport Plaza Hotel please select the relevant ticket in the scroll bar below. Once you have selected all your required tickets please scroll down and click the order button. This will bring you to the registration process within Eventbrite the event booking site.

We are running this event to raise much needed funds for very deserving Neurological Disease Charities. We would be most grateful if you would agree to seek sponsorship from your friends, family and colleagues by setting up an idonate fundraising page. To do this simply follow the steps outlined in the ‘Fundraising Page Set Up’ section below. If you would prefer to use a printed sponsorship card please email us at sunriseupcroaghpatrick@gmail.com with you name and address and we will forward it to you.

#Sunriseupcroaghpatrick 2018  Weekend Plan

Friday June 29th

Join us for drinks in the Westport Plaza Hotel

Saturday June 30th

Please arrive at 9.30am to allow time for check in :

10:00   Climb Croagh Patrick  Or  Hike / Walk 4Km or up to 11Km, low level trail. Please check in & out at the Sunriseupcroaghpatrick desk at the Croagh Patrick Car Park / Visitors Centre before and after the climb or walk. (Bring some coins for the Car Park).

Video1 Croagh Patrick

Video2 Ascending Croagh Patrick on a beautiful sunny day

Lunch in the Tavern Bar & Restaurant Murrisk (600m from the Croagh Patrick Car Park) when you finish (good value available for participants and supporters)

20:00 Plaza Hotel : Dinner & Function. Please join us for dinner and a good night of fun in the Wesport Plaza Hotel. (Limited places so book early to avoid disappointment). Simply select one of the 2 types of Dinner ticket available in the Ticket section below.  Select the first dinner ticket (free) if you have booked the Westport Plaza Hotel weekend package and want to use the dinner element for this function. The second Dinner ticket is for all others who wish to attend.

Sunday July 1st..

10:00   Cycle (10am bus transfer with bikes from Westport Plaza Hotel to Achill or Mulranny): On Sun July 1st some of us will be cycling from Achill to Westport 42.5 Km along the Greenway (Mulranny to Westport is another shorter option c 23km). This is an optional extra for the weekend and a trial event for this year (limited places so book your ticket on the link above). It is recommended that a hybrid bicycle be used on this trail. Use your own bike or hire one for €25 from Westport Bike Hire on +353 (0) 86 088 0882. Please hire the bike or have your own ready well before the 10am bus transfer from Westport Plaza Hotel to Achill / Mulranny. More details will be given to those who register so please do so below to secure a ticket / place on the bus. Bring a picnic. See the Western Greenway website for more info: http://www.greenway.ie/

Lunch and Depart.

* For room reservations at the Westport Plaza Hotel, use ref # 223760 ; 2 Nights BnB + 1 Dinner €199 per person sharing, single supplement €35.

P  00353 98 55088  ;  Email: yourgroup@westporthotelgroup.ie Web: www.westporthotelgroup.ie

NB, Some may wish to stay at other venues; Westport is a very popular destination, We recommend booking as soon as possible to avoid disappointment.

Fundraising Page Set Up

All fundraisers must register on iDonate.ie – https://www.idonate.ie/user-registration.html .

Following registration on iDonate.ie you will receive an email with an activation link.

Follow link to login.

Login

If already registered, login on https://www.idonate.ie/userlogin.html

Create Fundraising Page

1)           Open  the event page https://www.idonate.ie/event/1929_sunrise-up-croagh-patrick.html

2)           Click Start Fundraising. This should open the fundraising page setup with steps 1 – 7.

3)           Several fields are required before you can save page

  1. Event Details – These should be pre-filled for you
  2. Target – Enter a target € amount in step 5
  3. Select Cause(s) – in step 6 where you will find ‘+ icons’. You can decide to search for and select 1,2 or all 3 of our chosen charities: YOUNG PARKINSON IRELAND, IRISH MOTOR NEURONE DISEASE ASSOCIATION, HUNTINGTON’S DISEASE ASSOCIATION OF IRELAND (HDAI).

If you choose more than one all funds raised are split evenly among the charities you select.

4. Save Page .

At this point your page is live and open for donations. You can customise the page further with profile pictures, why you are fundraising, image gallery etc. To maximise your fundraising potential please share the link to you iDonate page with all your friends, family, contacts and colleagues.

For any queries with this process please email support@idonate.ie

The story so far . . .

 

How a family tradition turned into an international annual gathering.

 

We’d been up Croagh Patrick a few times. Dad’s birthday is July 17th, so we’d come home for his birthday and climb Croagh Patrick that weekend.

In January 2016, my mother-in-law, Eleanor, passed away with Huntington’s disease. It wasn’t until the middle of May it dawned on us to dedicate the climb to the memory of Eleanor and in support of the Huntington Disease Association of Ireland (HDAI). Two of us climbed that year and we raised over €5k for HDAI.

When we got back to London, the team were so impressed with the pics, they immediately said “We definitely want to do this next year!”.

And so the inspiration grew. . . .family, friends, work colleagues and supporters of each of the Charities joined in the cause so we had  40 people participate in the 2017 climb resulting in a total of €15k being raised across the Charities. We aim to make it even bigger again this year. Hopefully you can join us.

Thank you

John Kelly

This year we are supporting:

Young Parkinsons of Ireland Association as part of the Parkinson’s Disease Association of Ireland

Huntington’s Disease Association of Ireland

Motor Neuron Disease Association of Ireland

 

Our Charities

Can we say just how important these Associations are. These are the organisations who champion the patients and families of people who contract these neurological conditions. They are in your corner from the moment you get connected. They hold your hand throughout. The difficulty is that they are self funding and need proper help.

None of them have enough specialist nurses to help in the community.

  • IMNDA, have over 350 patients in Ireland, with 3 nurses covering the country.
  • PDAI have 12-14,000 with 3 nurses
  • And HDAI have somewhere in the region of 750 patients, they are not sure, with 3000 people at risk; they don’t have any nurses.

Ireland has 34 Neurologists; it can take 6 months to see one, even if you have the money. On average, it takes over 2 years to get a diagnosis, or it did in our case.

The Associations exist because they are needed, with a bit more help they could do so much more.

Huntington’s Disease Association of Ireland

Huntington’s Disease Association of Ireland (HDAI) provides consultation, information and individualised support to those diagnosed with Huntington’s Disease (HD), their families and their health care team. CHY 10130

 

Motor Neurone Disease Association of Ireland

The Irish Motor Neurone Disease Association (IMNDA, CHY 8510) is the only organisation of its kind in the country. We are dedicated to working on behalf of people living with MND and their families and carers. Our key services include home visits by our 3 MND nurses, financial assistance towards home help and the supply of specialised equipment on loan. We also fund and promote research into the causes and treatments of MND.

Young
Parkinson’s
Ireland
.

YPI is a national branch of The Parkinson’s Association of Ireland and its key focus is supporting people living with Young Onset Parkinson’s. CHY No. 10816

 

Fergal’s Run

250 Km across a desert in up to 50 degrees Celsius over 6 days

April 8-13 2018
.
.

Hi, My name is Fergal O’Neill and I have just completed the Marathon des Sables, the toughest foot race on Earth on April 8-13th 2018. It was a 250Km marathon across the Sahara Desert over 6 days in extreme heat carrying all needed supplies in my own backpack.
I’ve chosen to fundraise for 3 very deserving Neurological Disease Registered Charities: Young Parkinson Ireland, Irish Motor Neurone Disease Association and Huntington’s Disease Association of Ireland (HDAI) . They are all in dire need of funds to provide specialist nursing care to patients. All funds raised here will be equally divided and sent directly to these 3 great causes.

Please support me by making a donation.

Thank you.

See information on the Marathon Des Sables :http://www.marathondessables.com/en/marathon-des-sables-maroc/2018